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What are the Difficulties of Using Open Research Data in clinical research? – Pubrica
Open Research Data
In its most basic form, data
sharing is the practice of making empirical data from researchprojects freely and unqualifiedly
available. Shared data, like shared materials, can be stored in additional
online files with a published paper, either part or under a distinct DOI. When
data is shared, readers have on-demand access to the data files from which the
reported analyses are produced while reading the findings section of a
publication. The amount of detail that an author may drive into while
discussing their data is limited in manuscripts. As a result, authors will only
report what they believe readers will either (a) want to know or (b) need to
know, which frequently results in reports of only summary findings: basic sample
descriptive information, nominal information for statistical significance tests
(such as condensed or rounded p-values), or the use of paradigms to represent
trends in open-ended data collection services.
Features and Guidelines to Share Research Data
SMART Experimental Design
Boosts Data Reusability
Specific, Measurable,
Attractive (or Achievable), Relevant, and Timely is an abbreviation meaning
Specific, Measurable, Attractive (or Achievable), Relevant, and Timely. This
method aids in determining whether or not a concept is viable in terms of time
and finances. Whether doing a wet or dry lab Experimental Design, it is critical to devote time and effort
to the design of the experiment before getting hands-on. Scientists
characterise their experiment as simple as feasible while keeping it as
complicated as required after passing these criteria. A good data management
strategywill outline the whole data treatment process both during and after a
project.
Standard Formats Facilitate Data Exchange
Over
time, science has become more complicated and multidisciplinary. Scientists
must develop a language Franca through which they can interact and exchange
data. It is desirable to transmit data using standard file formats rather than
proprietary file formats; however, selecting a standard format to represent
data and metadata is not always straightforward.
The FAIR Guideline Principles Ensure
Data Transparency, Reproducibility, and Reusability
FAIR is the acronym
for Findable, Accessible, Interoperable, and Reusable. The FAIR principles are
intended to serve as a roadmap for data producers, published journal papers(BK2) and controllers. FAIR data,
according to the above-referenced paper, should be:
·
Findable: data has a
unique and permanent identifier (PID); metadata properly identify and fully
explain the data to which they relate; and (Meta) data is placed in a findable
repository.
·
Accessible: Metadata is
recognised using open and standard protocols; metadata is accessible even if
the data is no longer available.
·
Interoperable: (Meta) data
allow for platform interchange and are machine-readable; (Meta) data are FAIR;
and, where necessary, refer to other sources of (Meta) data.
·
Reusable: (Meta) data
are thoroughly defined; (Meta) data have a clear and easily available licence;
(Meta) data adhere to community-driven standards
About Pubrica
At Pubrica, we collect
data from a wide range of sources and perform semantic annotation based on
the clinical
research questions that you want to solve. Pubrica has the vast
majority of the data in the form of doctor’s notes; electronic
medical records, prescriptions, and similar information are available. Although
therein lies the golden possibility of big data in medical care, but it’s
challenging to yield valuable insights due to complex, unstructured, and
longitudinal and voluminous data.
Continue reading : https://pubrica.com/academy/research-services/what-are-the-difficulties-of-using-open-research-data-in-clinical-research/
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